My “Gift of Life”- Rita’s Incompatible Kidney

A Race in Time- Incompatible Kidney Transplant Program

Rita’s Perspective 

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Me and Dr.Ratner before surgery

 

 

 

 

 

 

 

 

 

 My “Gift of Life”- Rita’s Incompatible Kidney 

For years, Rita had indicated a willingness to donate her kidney.  When tests were first taken, Rita’s blood type was AB positive and mine was O negative.  In addition all six cross match categories were incompatible. The less compatible two people are the greater likelihood the transplanted kidney will be rejected.

We were totally incompatible in both blood type and cross match (ABO-Incompatible).  She and I were devastated.   We did not realize that over one-third of willing donors are turned down because their blood types are not compatible with the person to whom they wish to donate their kidney. 

The main reason compatible kidneys are necessary for a successful transplant relates to your antibodies.  These antibodies adversely affect the immune system and can rapidly destroy the transplanted kidney. 

One day while scrolling the internet I discovered that ABO-incompatible transplants were being performed in Japan, primarily due to the homogeneous nature of their society, but rarely anywhere else. I then discovered Dr. Lloyd Ratner, a leading kidney transplant surgeon, had recently transferred to Jefferson Hospital in nearby Philadelphia, where he became the director of transplant kidney surgery and a pioneer in the area of ABO-Incompatible transplant.  After researching the issue, my insurance company agreed to provide coverage for both the donor and the recipient. 

For the first time, Rita and I felt our prayers were being answered.

A Race in Time- Incompatible Kidney Transplant Program             

Even though we had located the surgeon and hospital, we still needed to be  accepted into the Jefferson Hospital ABO-Incompatible Transplant Program before I needed dialysis.  Risks may occur with dialysis such as infection and clot formation, which can affect the acceptance or timing of the transplant operation.  My nephrologist estimated dialysis treatment could start sometime around March 2003.

 In December 2002 Rita and I  had our first  opportunity to meet Dr.Ratner.  He had the confidence of an experienced surgeon, the patience of a saint and the personality of Bob Hope. We found him to be a wonderful person. After explaining the transplant procedure, we agreed to take the next step with the hope that we would soon be accepted for surgery. 

All surgery requires some evaluation before the decision is made to operate. In the case of organ transplant (particularly incompatible) there are a significant number of tests for the donor and recipient that take a great deal of time and effort.  We were assigned Kim Phillips, a wonderful kidney coordinator who was instrumental in helping us through the process.  Without Rita’s drive and perseverance, however, the tests would never have been completed in sufficient time.

On New Year’s Eve Kim Phillips called to advise us that the tests were completed, the results were in and we were accepted into the ABO-Incompatible Transplant Program at Jefferson Hospital.

Rita’s Perspective 

It really took no time for me to decide to donate a kidney to my husband, Andrew.  When you love someone as much as I do, it becomes natural to do whatever it takes to help your loved one feel better.  One of the reasons I fell in love with Andrew was his outgoing personality and positive outlook.  Andrew’s failing health started to adversely affect his activities and overall outlook on life.  I wanted to do "something".

In order to qualify for the ABO-Incompatible transplant, I had to undergo numerous tests. They included x-rays, electrocardiogram, urine and blood tests, CT scans as well as a psychological evaluation.  It was rigorous, but not invasive. 

These tests can take months to complete. Since time was critical, I completed the battery of tests in two weeks.  I was gratified and excited to receive the call on New Year’s Eve that we were accepted into Jefferson Hospital’s ABO-Incompatible program. 

The laparoscopic procedure to remove my kidney was minimally invasive, relatively painless, and left only a small faded three inch bikini scar. I was discharged from the hospital within four days and well enough to drive and perform routine activities within two weeks.  

Thousands of people are waiting for a kidney transplant. ABO-Incompatible surgery expands the chance of donating a kidney to a non-blood relative, spouse or friend.  The truth is- if everyone knew the ease and satisfaction of donating a kidney, more transplants could occur and more lives would be saved.

                    
                      

Designed by Rita Weber                                                            Contact us: akidney@comcast.net

 Disclaimer: This website is for informational purposes only.  It is not intended as medical advice and is factually accurate as I can recall. You should consult with your healthcare provider before pursuing treatment or taking medication.  © 2003-2004 Rita Weber. All Rights Reserved.  No portion of this website may be reproduced or redistributed without permission.